When your body hates you

When another person in your life doesn't like you it's easy enough to create distance but when your own body keeps putting kick me signs on your back what do you do? The good news is that my treatment, for all of its ineffectiveness, pretty much stays the same.  The bad news is I've collected... Continue Reading →

But I like the additives!

Since starting the tour of doctors I've also been doing some research on natural remedies.  There is a whole lot out there that says it will cure all sorts of things and I'm going to use my degree in internet bullshit and say more than 99% of it is well...bullshit. Yesterday I read on a... Continue Reading →

Inspiration comes from everywhere

  I shut down this blog because I'm good at starting things and terrible at finishing them.  I can come up with a million excuses, from not being able to type much because of hand pain (voice to text is getting better!) to not even really remembering the purpose of starting the blog. Earlier this... Continue Reading →

Yoga for Arthritis and Chronic Pain

I found a 6-week workshop on Yoga with Arthritis and Chronic Pain.  It's too far away to attend long-term, about 35-minute drive.  But it's very helpful.  I'm learning about modifications and poses that can help with joint pain and enthesitis.  I really want to build a daily practice, every day I start with the best... Continue Reading →

a Flair and a mile stone

Yesterday my SI joints started giving me fits. By this morning I could barely roll out of bed. I called out of work and spent the entire morning doing the very minimum I needed to do to help the kids get off to school. After they were gone it took another 2 hours just to... Continue Reading →

Physical Therapy in the Pool

I started PT today and they put me in the pool. It was just 30 minutes of some very simple core stability exercises, very underwhelming. The biggest concern about all of this was what to wear! I did not want to wear a regular swimming suit. For some reason it just felt weird because I... Continue Reading →

Things are getting real

I believe I said things were moving fast, well we hit light speed after the holidays.  Right now my new normal is this: I'm finishing up the Remicade preloading infusions on May 22nd and will continue with every 8 weeks after that.  It was clear that I needed to start a biologic treatment.  My inflammation... Continue Reading →

Stress

I'm a big ball of stress tonight. I think I have been pretty successful the entire long weekend putting the neurosurgeon appointment out of my mind. I went about life as normal and even had some fun and felt pretty good doing it. But here it is, the night before my return to work which... Continue Reading →

Happy Thanksgiving

I feel as if I have much to be thankful for even though I'm struggling with these new physical issues.  First and foremost I'm so thankful for my family.  I have an amazing husband and 3 wonderful children that put up with me and my moodiness on a daily basis. As odd as it sounds... Continue Reading →

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